By Mandl KD, Kohane IS, McFadden D, et al.
Abstract
We describe the architecture of the Patient Centered Outcomes Research Institute (PCORI) funded Scalable Collaborative Infrastructure for a Learning Healthcare System (SCILHS, http://www.SCILHS.org) clinical data research network, which leverages the $48 billion dollar federal investment in health information technology (IT) to enable a queryable semantic data model across 10 health systems covering more than 8 million patients, plugging universally into the point of care, generating evidence and discovery, and thereby enabling clinician and patient participation in research during the patient encounter. Central to the success of SCILHS is development of innovative apps to improve PCOR research methods and capacitate point of care functions such as consent, enrollment, randomization, and outreach for patient-reported outcomes. SCILHS adapts and extends an existing national research network formed on an advanced IT infrastructure built with open source, free, modular components.
Mandl KD, Kohane IS, McFadden D, et al. Scalable Collaborative Infrastructure for a Learning Healthcare System (SCILHS): Architecture. Journal of the American Medical Informatics Association: JAMIA. 2014;21(4):615-620. doi:10.1136/amiajnl-2014-002727.
Website: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4078286/